No matter how Brave the Face . . .
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| Janine . . . sleeping on her feet in 2005 |
Lyme and Fibromialgia show pain and fear in their eyes. PART 2
The Survival Diary of Janine Thill
Sandsie's Comments:
The latest post is an echo to
the last one on Lyme disease. Two
comments trigger this post:
The first: A female Lymie went beyond scolding me to an all out attack
of the nasties. The woman claimed that hyperbaric oxygen therapy does not work
in curing Lyme. She ranted at me accusing me of having zero experience in medicine. Then she made the
comment that only a person with Lyme could understand and cure a Lyme patient. In truth, she was not doing such a good job on
herself . . .
It made me think of Janine
Thill.
The second: This morning’s
email was an enquiry: “the folks giving
me hyperbaric therapy said that I have to have chelation before starting hyperbaric oxygen therapy (HBOT), since the
pressure of oxygen forces the heavy metals deep into the cells’.”
Nothing could be further from
the truth. This demonstrates that many,
who claim to know about and dispense HBOT, are profoundly ignorant of
the mechanisms of gas effects on mammalian physiology.
Again, I thought of Janine.
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| Janine in 2012 . . . No longer in Lyme Green. What are those patches on her lab' Jacket? |
Excerpts from the Survival Diary of Janine Thill . . . .
“In 2003 .. I started developing extreme
fatigue, neuralgia, muscle spasm, acute joint pain in multiple locations. Depression followed, along with chemical
sensitivity, extreme cognitive and memory problems.
Finally in the beginning of 2005 I was
tested for Lyme Disease. I was POSITIVE. Three of the four members of my family
also tested POSITIVE.
We all started treatment as recommended
by the doctors which included many drugs: Doxycycline, Flail, Amoxicillin,
Zithromax, Mepron, Ketec, etc, . . . The
list goes on an on . . . We did months
of IV treatment. Our livers swelled, we had extreme headaches, sweats and
fevers, lost vision, had tremors, lost muscle control.
Sandsie’s
Comment:
After
dispensing HBOT to more than seventy Lymies in San Diego prior to my retirement
it seems to me that patients that have had extensive antibiotic treatment prior to commencement of HBOT (with the same
comments as Janine) have a longer
rehabilitation period after the HBOT has eradicated the Lyme spirochete. “It is
crazy to poison and compromise the immune system with antibiotics” (from Dr. JW
-- HCI Science Advisory Board)
If
any of you wish to have a list of antibiotic side-effects sent to you electronically,
you can email me at info.hboinfo.com.
Excerpts from the Survival Diary of Janine Thill . . . .
My husband was so sick my fifteen year
old son would drive him to work (we are self employed) and then do the work for
him while he laid in his work truck. My daughter and I were both so sick we had
to drop out of a nursing Program at the local College, after attending four and
a half years. This, after a year and a half of conventional antibiotics.
Finally, in 2005, a friend told me about
Hyperbaric Oxygen Therapy (“HBOT”.) I
was skeptical but started my research. Around that time a childhood friend tried
HBOT and got his life back. It was an amazing transformation. I decided to try myself. It took a little
while but I raised the funds and credit to have my daughter and I to travel to
San Diego for HBOT.
At San Diego Hyperbarics, the staff was
excellent and the treatments were comfortable. In the beginning it seemed like
NOTHING was happening except I felt toxic, as usual. I was very fatigued and
emotional the first half of my treatments. By the 15th treatment my
husband noticed that I had more energy and was more positive (I did not realize
it at the time, but he did!)
Then by the 21st HBOT
treatment I noticed that I started to remember phone numbers. I had my ups and
downs with Herxing, and I still had some
neurological symptoms with spasms of
weeping in frustration at my slow progress. Little by little the pain
disappeared in my joints and then finally the muscle spasms were gone.
By the 26th treatment that
when I came out of HBOT, I felt good and had more energy than when I went in.
At the end of the week, my sister visited
– after a day of working – for dinner and a movie at night. It was the
first time in years I could function and night and we had a great time. And I haven’t
stopped since.
Sandsie’s
Comment:
Janine
followed a typical recovery path with Lyme and co-infections. Depending on how
entrenched the bacterial load is, the more HBOT Tx. it takes. Lyme differs from
chronic fatigue (“CFIDS”) and its neurological pains. In the instance of CFIDS,
the patient gradually curves upwards, with less pain and more vigor to the
point on a chart in which the patient claimed “cure”
On
the other hand, since Bb is a
gramm-negative bacteria, it gives off endotoxins in death. Thus the patient has
a bad Jarische Herxheime’rs reaction during treatments and then up to three
days before the proverbial “make-up attack” (with females) the patient still
feels that all the money and time has been wasted. Typically, the elevator ride of “I still have Lyme” to “It’s over, I am well again” is about three
days.
From
memory, Janine was distraught two days before her last treatment over “not all
that much has happened,” when she bounced in and said “Sandsie, I went to the movies with my sister last night – first time
in years, and this morning I just feel great.”
Excerpts from the Survival Diary of Janine Thill . . . .
I am so thankful. Although everyone’s
response can be different to HBOT, some patients may need more treatments then
others, why wouldn’t you want to stop suffering and be the BEST you can be. Do
it now! I only wish I done Hyperbaric Oxygen Therapy sooner!”
Sandsie’s
Comments:
Dr.
Oz recently made the observation that
once a patient survives a serious or life threatening illness, they are
never the same.
So too with Janine.
She
opened her own hyperbaric oxygen therapy center in Marin County!
One
of the classiest and the highest award-winning
free-standing hospital-quality oxygen centers in the State of California.
I
retired as you all know. I do not need to beat the drum for any particular HBOT
Center. In this instance I am. Especially in view of my comments at the start
of this post. Janine really has first-hand knowledge of the misery of Lyme and
has a high end scientific understanding of the disease.
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| One thing worse than being put into second place . . . Getting a good pinching in front of 250 people. The look in Janine's eyes? You tell me. No longer a Lymie in 2008. |
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Phone: (415) 785-8652 Email:
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I just love the
YouTube presentation from one of Janine’s
physicians since, while you watch it,
you will see the chambers I designed and then, in the background while Dr. Ekolm explains the science, there is a
large screen and you will see me being featured in the Discovery Channel’s “The
Healing Chambers” special of 2002. Ego. It squares away for the public pinching (actually I deserved it.)
Sandsie’s Final Comment:
About chambers: You CANNOT get
the same results an inflatable chamber. They do not work, and I
hold the very strong opinion that they are a sham and a waste of time for any
chronically ill patients. If you do your due diligence on me, you will see that
the very first chamber that I applied for a patent on was an inflatable in 1983 for the Australian Government. Science could not prove them as useful.
Important Note:
Regarding inflatable air-bag chambers: Recent media attention to the so called “mild HBOT” inflatable air-bag chambers is misleading. I believe these devices cannot be adequately pressurized and are a waste of time and money to their users in treating infections. They ARE NOT hyperbaric oxygen chambers. They CAN NOT provide the healing effects of hyperbaric chambers where the patient breathes 100% oxygen.
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| 1.3 ATA on Air (21.7% O2) F.D.A. rules. Raises O2 saturation to from 21.7% to26% . |
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Sandsie with a bag chamber . . .
"I have strong opinions on the uselessness of these about
treating Lyme and other infections.
There is now some scientific opinions that breathing
compressed air
for long periods of time,
in
creases nitrogen loading to the patient's soft tissue
and may be subtly detrimental"
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Thanks for sharing your story with us. Hyperbaric oxygen therapy increase intake of oxygen in the body and help to make fast recovery.
ReplyDeleteShai Efrati